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More details are coming out about the Rom Houben case.  This struck me hard.  From the story:

Belgian doctors who treated him early on said that Rom had gone from a coma into a vegetative condition. Coma is a state of unconsciousness in which the eyes are closed and the patient can’t be roused, as if simply asleep. A vegetative state is a condition in which the eyes are open and can move, and the patient has periods of sleep and periods of wakefulness, but remains unconscious and unaware of him or herself or others. The patient can’t think, reason, respond, do anything on purpose, chew or swallow.

But Rom’s parents would not accept that he was comatose or vegetative.

His mother, Fina Houben, said in a telephone interview that they took him five times to the United States for tests. More searching finally got her in touch with Laureys, who put Houben through a PET scan that indicated he was conscious. The family and doctors then began trying to establish communication. A breakthrough came when he was able to indicate yes or no by slightly moving his foot to push a computer device placed there by Laureys’ team. Then came the spelling of words using his finger and a touch-screen attached to his wheelchair.

Gee, it’s a good thing they didn’t have an utterly intransigent judge saying “NO!” to every request for a PET scan and standing directly in the way of their never giving up hope.


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